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Delivering healthcare services to children with cerebral palsy and their families: a narrative review

机译:为脑瘫儿童及其家庭提供医疗服务:叙述性回顾

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摘要

Children with cerebral palsy have complex healthcare needs and often require complex multidisciplinary care. It is important for clinicians to understand which approaches to healthcare service delivery for this population are supported in the literature and how these should be applied in clinical practice. This narrative review aims to identify and review the evidence for current approaches to healthcare service delivery for children with cerebral palsy. Databases were searched using key terms to identify relevant research articles and grey literature from December 2011 to September 2013. Search results were screened and sorted according to inclusion and exclusion criteria. Thirty-two documents were included for evaluation and their content was analysed thematically. Three current approaches to healthcare service delivery for children with cerebral palsy identified in this narrative review were family-centred care, the World Health Organisation's International Classification of Functioning, Disability and Health, and collaborative community-based primary care. However, healthcare services for children with cerebral palsy and their families are inconsistently delivered according to these approaches and the identified guidelines or standards of care for children with cerebral palsy have limited incorporation of these approaches. Future research is required to investigate how these approaches to healthcare service delivery can be integrated into clinical practices to enable clinicians to improve services for this population.
机译:脑瘫患儿有复杂的医疗保健需求,通常需要复杂的多学科护理。对于临床医生而言,重要的是要了解文献中支持该人群的医疗服务提供方法以及在临床实践中应如何应用这些方法。这篇叙述性综述旨在确定和回顾当前为脑瘫儿童提供医疗服务的方法的证据。使用关键术语搜索数据库,以识别2011年12月至2013年9月的相关研究文章和灰色文献。根据纳入和排除标准对搜索结果进行筛选和分类。包括了32个文档进行评估,并对其主题进行了主题分析。这篇叙述性综述中确定了三种为脑瘫儿童提供医疗服务的当前方法,即以家庭为中心的护理,世界卫生组织的国际功能,残疾与健康分类以及基于社区的协作性初级护理。但是,根据这些方法不能为脑瘫儿童及其家人提供保健服务,并且已确定的脑瘫儿童护理指南或标准限制了这些方法的应用。需要进行进一步的研究以调查如何将这些提供医疗保健服务的方法整合到临床实践中,以使临床医生能够改善针对该人群的服务。

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